INDIANAPOLIS, Ind. (ADAMS) – A new Indiana law hopes to save the lives of countless newborns by catching diseases early. State Representative Doug Gutwein says children will be screened for more rare diseases, including Krabbe disease.
Governor Eric Holcomb signed Bryce’s Bill into law last week. The legislation was inspired by a one-year-old Indianapolis boy named Bryce Clausen, who was diagnosed with Krabbe disease when it was already too late for treatment. It destroys nerve cells in the brain and throughout the nervous system and one day could prove fatal. With the new law, Pompe [[ Pom-pay ]] Disease and Hurler Syndrome are also being added to newborn screenings. Holcomb says he’s proud to enact SB 41. Additional Audio
Gutwein says early disease detection is key with saving children.